Everything Fred – Part 81

30 June 2023

I headed to Dr. Dunhill’s office to provide a urine sample as a pre-requisite for surgery clearance. It was actually a quick in and out after they figured out how to check me in. There was a new person on the computer and she was having a little trouble figuring out entries to allow me to simply do a urine sample.

This should clear me for surgery. I have a final meeting with Dr. Dunhill on the 5th of July and that should be it.

The guys showed up around 10:30 am and immediately started to paint. I was pretty sure I had found the paint color I used on the outside of the house but it was anyones’ guess as to whether to colors would match considering it’s been years since I last painted the house. The sun down here fades colors pretty quickly.

It’s hard to tell with the angle of the light but the wall on the right is the old house color and the wall in front is the new color. The new color is still wet so when it dries, it may dry darker.
I’ll probably ask for a little of the paint to do touch ups. I can see on the shelving there are some areas that didn’t get painted.
The wall where the electrical panel is has the old color and the wall to the right of the panel is the new color.

They are at lunch as I write this and will be back later to finish up the rest. They apparently do a Flanigan’s lunch with the crew on Fridays. When they return, the biggest problem will be putting the appliances (utility sink, washer, dryer) and shelving units back into the utility room.

I’m liking the celery color in the vestibule more and more. With all the work inside and outside of the vestibule, the windows got exceptionally dirty with fingerprints, dry wall compound, and paint so I spent a little time washing windows. I absolutely hate dirty windows.

Clean windows!

The real problem for me is re-hanging the curtains in the vestibule and all the art. I’m also washing all the dishes that were in the pie safe. They’ve been sitting out on the kitchen table and counters for around a month and probably picked up a ton of dust. Yes, I know I don’t have to do everything in one day but I get antsy and want it all back in place.

God only knows where I get this trait from. It certainly didn’t come from Ruby or Mother. Maybe it was the Boy Scouts that drilled this into me about everything has its place.

They put the utility room back in order and I have to admit, it was probably neater than I would have done it.

Of course, it’s pretty junky in any case but it’s nice to have it back in several thousand pieces.

Everything that was taken out of the garage, I put back this afternoon. I got the pie safe back in position and half way stacked with dishes inside. I’m washing the other half now (at least the dishwasher is). All the quilts and towels are now in the steamer trunk. I’m exhausted. I’ll wait until tomorrow to put the curtains up. If I do it now, while tired, I’ll make too many mistakes.

It’s time for a dip in the pool to cool off (while dodging lightning bolts).

Just received my urinalysis. Orange colored, turbid, leucocytes, proteinuria, mucous and bacteria. Altogether, not a good report. In sum, it indicates a urinary tract infection, dehydration, and kidney damage. I knew this except for the UTI. I suspect Dr. Dunhill will put me on an antibiotic.

Stay tuned!

Everything Fred – Part 80

29 June 2023

I screwed up. I was supposed to pick Tom up and deliver him to Holy Cross for his surgery this morning. I was out of bed at 5:30 am, dressed at 7:30 and was killing time so I would be too early to pick him up at 8:30. By the time I left the house I realized I had not allotted enough time with morning I-95 traffic and busy side streets. I called him and suggested he call an Uber. He eventually made it to the hospital about 18 minutes after his scheduled time but in plenty of time for the surgery. I felt badly I miscalculated.

After returning home from the attempt to deliver Tom, I spent the rest of the morning raking leaves on the west side of the house where the mango seems to be in shed mode. I then cleaned the pool filter, the patio, and portions of the pool deck with iguana poop. There’s always iguana poop to clean up.

Chad, Eric and Rudy showed up this morning (unexpected) and started in on completing the project. Eric started putting baseboard down and Rudy emptied out the utility room to ready it for carpet.

Empty utility room. Floor has paper backing of old vinyl flooring in places.

Chad left to buy paint for the stucco and the interior. Apparently, Sherwin-Williams has a new product that allows you to put a primer on stucco that isn’t completely dry and then you can put the final coat on after the primer dries. Who knew?

Rudy painted the vestibule with my choice of Sherwin-Williams “celery.” It doesn’t look like there’s any color to the walls with the naked eye but when I took a photo with my iPhone, the color came out.

I suspect the color will look even better when I get the curtains hung and everything back in place.

When Eric was putting down the carpet in the utility room, he put glue underneath. He discovered that the glue is coming up through the carpet in places. We’ll let it dry overnight before putting anything back in the utility room.

Rudy checking out the carpet. What looks like paint spots is the glue coming through.

I don’t really care about the glue spots. The carpet will get a lot more on it as time goes by. I just like that it’s down and I can vacuum any dirt from the carpet. When it was bare concrete/glued paper like in the first photo, it was impossible to keep from getting gritty and dirty.

If all goes well, they may be able to finish everything up tomorrow and I can start putting my house back together again. One step forward….

Stay tuned!

Cancer Update – Part 25

28 June 2023

Had an endocrinologist appointment this morning at 10 am. The nurse took me in around 9:40 and took my vitals. In conversation (she knew about my cancer diagnosis) she asked who my new hematologist/oncologist was and when I told her, she had worked with him at the Breast Cancer Institute many years ago. Small world. She really liked him and admitted to having a crush. She says he’s very empathetic.

Now I get to quiz the new guy if he remembers her and then get to tease both of them about the crush. Life is good!

Normally, I always schedule the endocrinologist for the first afternoon appointment. I’ve learned he likes to spend time with his patients and if you are the second or third appointment, he is always running late. I had to cancel that particular appointment due to diarrhea and could only get the second appointment for this morning. He was only an hour late but I didn’t mind. He’s always late to the others after my appointment so I didn’t begrudge being late to this one after I made him late to so many others.

As I mentioned previously, my blood work was all over the place with high A1c, high white blood cell count, liver enzymes high, kidney function low, etc. that he decided not to fool with my current diabetes medications and simply retest me in three months. We talked more about my cancer diagnosis than we did diabetes. He kept trying to build my confidence in the surgery and the outcome and I appreciated it. He also suggested I ask for a hospital stay for a day or two since I live alone. He also reinforced the idea of home health care to tend to the drains and to change the bandages. He said Medicare should pay for that. That’s the type physician he is – he goes the extra mile with concern and advice.

He did mention that if I consistently test high in the 160-200 range for glucose any length of time to call him and he’ll add another drug to my metformin but not to be too upset if my glucose spikes for a few days.

After leaving the endocrinologist, I headed to CVS to finally pick up my prescription form of Lomotil. Holy Cross, when they prescribed it, specified a liquid. That had to be special ordered and it’s taken from 13 June until 28 June for it to come in. It cost a whopping $60. I’ll ask my primary to write a prescription for the pills which should be much cheaper and much easier to take.

The contractor texted me while at the doctor’s office and said he was at my house finishing the stucco. It looks good. He just stopped by to drop off some baseboard for the vestibule and to check there was no cracking in the stucco. He was in a talkative mood. He thinks he can finish up by next week everything that needs to be done on the outside and inside.

Finish coat of stucco on east wall. It’ll need around 3 days to dry before he paints.

When we first met and he learned about my breast cancer, he admitted to feeling a lump in one of his breasts. His girlfriend insured he got checked out and he eventually had an ultrasound. The doctor cleared him of breast cancer and I’m glad he got it checked out. He mentioned that his Mom’s boyfriend had to also get checked out. Seems to be going around a lot.

Tomorrow, I take Tom in for his second knee surgery. I’ll drop him off at Holy Cross and another friend will pick him up in the afternoon after the surgery. They get you in and out in a hurry these days.

At least the diarrhea has abated for the last two days. My appetite is stronger and I seem to be more open to more different foods other than bananas, although I still have them every morning. Officially, I’ve lost 3 pounds. I think it was actually 5 but since I’ve been better with my appetite, I think I’ve gained a few of those back – or simply haven’t pooped it out yet.

June has been a very rainy month even as the rainiest month of the year in Florida. Our normal rainfall in Fort Lauderdale in June is 6″. The South Florida Water Management District reports that from January to June 2023 Broward county as had 38.99 inches of rain which is 165% of the normal and we are now 15.33 inches ahead of normal for the six month period. For June (with three more days to go) we’ve had 10.93 inches which is 147% of normal with 3.48 inches ahead of normal – and – it looks like it will rain this afternoon.

I suspect when the data are in, we’ll find June broke records again for highest temperatures. Humidity in Broward is normally around 74% in June in which is sometimes described as “sticky.” Nice euphemism.

Stay tuned!

Everything Fred – Part 79

27 June 2023

OK, I know you must think I’m obsessed with poop but at this stage of my life it pays to be obsessed. Last night I had a major episode of diarrhea and woke up a little sleep deprived and with low energy. I didn’t do my morning walk this morning. I’m still taking Imodium and Lomotil and at least the number of episodes has decreased.

My friend John had a rare day off and wanted to know if I wanted to go to lunch. I was waiting on the construction crew and finally I just texted the contractor I was going to lunch and if they needed inside the house, he would have to use the key I left him.

We ended up at the Garden Restaurant at Oakland Park, the second time I’ve eaten there. Again, it’s a step back in time and after one of four customers left after we sat down, John and I were the youngest people in the restaurant. Everyone seems to come in on walkers or canes.

I ordered the brisket over noodles and John ordered a Denver omelette. He devoured his and I ate two of the four strips of brisket and had enough leftovers for two more meals. Slowly, slowly my appetite is coming back.

After paying (the cashier under charged us and John went to make amends) John wanted to head to a fresh market. It is located at the line between Pompano Beach and Fort Lauderdale and is called By Their Fruits, a reference to Mattthew 7:16 in regards to false prophets. There are Christian symbols on the wall and and hymns playing in the background but their fruit is fresh and well priced. John has shopped it personally and for other people for years and he really never paid attention to the religious aspect until someone pointed it out.

For some reason they were selling Israeli grapefruit (I bought three) and South Carolina peaches (which you could sample). Most peaches these days have a mealy texture to them and have virtually no taste. These were not mealy and tasted like peaches I remember as a kid.

Georgia is known as the peach state but South Carolina outproduces them. Apparently climate change is catching up with the Georgia crop. I mentioned hearing about South Carolina outproducing Georgia to the lady at the register and she also knew of the climate change affecting the peach crop nationwide.

Most peaches I was exposed to as a kid were “cling” peaches and indeed, when relatives canned them, you always had to eat around the seed (botanically a drupe). I remember my first “clear seed” peach and was amazed that you could get all the “meat” from around the seed and not waste any. Then there was the argument as to which had the better taste: clear seed or cling seed. I think cling seed tasted better but clear seeds were much easier to eat. It’s kinda like seedless watermelons. They are easier to eat but watermelons with seed taste better to me. That pretty much goes with any fruit with me: oranges, grapefruit, grapes, etc.

In the summer, Mom and Dad would load me and some neighbor kids up in the car and we’d either travel to south Mississippi or southwest Alabama and go peach picking. It was a fun and games until the sun got high in the sky and the heat became pretty unbearable and you realized the peach fuzz from picking peaches was getting all over your body. I’m not sure what is worse: fiberglass or peach fuzz. As kids, we ate as many as we picked and we all ended up a sticky mess but I have to admit it was worth it when Mom made peach cobbler for days. Overripe peaches were used in home made ice cream (with the hand crank and ice bucket).

My Aunt Sue used to make “pickled” peaches. I still love them. I think it was the cloves she put in hers that made hers so good. I remember sitting at her house peeling peaches as fast as I could as she canned them. What I can’t remember is if she had to use a pressure cooker on pickled peaches. You always need to use a pressure cooker when canning certain fruits and vegetables that are acidic, otherwise, you can simply sterilize the jars and lids and then seal. Regardless, it was always the summer when she canned and just about any time you stopped by her house, she would be standing over a hot stove canning some vegetable or fruit.

It was from her I learned what constituted a proper “seal” of the canning jar and how dangerous it is to eat from a canned jar that the lid had popped up. When canning, when you seal the jar, the jar lid is pulled down by a vacuum into a depression. If something went wrong with the process, bacteria would grow in the container and produce a gas that would cause the jar lid to pop upward. You learned to throw that away with eating unless you were a fan of botulism.

Years ago the federal government used to provide pamphlets on how to safely can and would provide a list of those food products that required a pressure cooker (15 pounds of pressure for 15 minutes) and those that simply required sterilized jars and lids. I wonder if anyone still cans today? It’s probably a lost art but one that would come in handy.

By the way, I’ve on occasion been in a supermarket and reached for a can with the top of the can puffed out. I’ve always taken it to an employee in the store and told them it was a bad can and needed to be discarded. I’ve gotten some strange looks from store employees over the years – I suspect they thought I was a nut case – but to their credit, they discarded the can and didn’t re-shelve it.

Although the contractor said they would come today and finish the stucco job, no one has show up and it’s 4:30 pm as I write this. Maybe tomorrow!

Stay tuned!

Everything Fred – Part 78

26 June 2023

Another rainy day, another small bout of diarrhea, and until a few minutes ago, no one showed up to work this morning. Situation normal.

Just a little while ago, someone rang the door bell and since that part of the house is closed off, I had to exit through the garage. I guy said he was here about the stucco job. I showed him the wall that had the skim coat on it. He kept shaking his head. He wasn’t thrilled with the person who did the skim coat.

The long and short of it was he said he could complete the job with a few more bags of mix and I needed to pay him $250. I told him I worked through the contractor and that cost had been factored in. I had to text the contractor to see what the deal was. The estimate was to include a finished stucco job. It’s irritating when someone outside a contractor starts asking for money. Hopefully, the contractor will tell him he’s covering the costs. In any case, if the finances get worked out, he can start as soon as tomorrow.

I managed a morning walk this morning for the first time in a very long time. It was warm but not oppressive. I didn’t do the full circuit but enough to get my blood pumping. I miss the walks, my yoga routine and my swims. I’m just getting back enough stamina to do it and then it’ll be time for the surgery and a six week recovery period and then more chemo. The only good thing to come out of this process so far is I’ve lost a little weight.

I’ve also tried to restart my basic diet. I think “real” food will help me get away from the diarrhea. This morning I had a banana with yogurt and for the first time in a long time a half grapefruit. Coffee still tastes like instant Sanka but tea still tastes OK.

I brew up a pitcher of Lipton tea and place it in the fridge. In the south, you boil water and then add tea bags. I use two family tea bags and after the water boils, cut if off, submerge the bags and let it steep for a couple of hours. I then pour it up into a pitcher and add water until I top it off. I learned this method from Arnema who used to work for Mom and Dad. When I want tea for breakfast, I pour a cup full and microwave it to get it hot. Works like a charm.

I have used tea “eggs” before and still do that occasionally, but I don’t like the mess of wet tea leaves left in the egg. My friend Wade in San Francisco got me hooked on Harrods blended black tea “English Breakfast No. 14.” It’s a loose leaf, hence the tea egg. It’s much better than Liptons but a lot more work.

I grew up on coffee. I’ve mentioned before that Grandmother Ruby boiled her coffee and poured some from her cup into a saucer and sipped it from the saucer after the grounds had settled. That was strong coffee I was reared on. I still love strong coffee.

I don’t spurge much on life but I do on coffee. I order my coffee from Blue Bottle in Oakland, CA. I got exposed to it one trip to San Francisco and was hooked. They roast the coffee on Tuesdays and send it out priority mail and if the postal gods smile, I get it on Thursday – often still warm from the roasting. Sadly, the gods have not been kind lately and it more often arrives on Friday or Saturday or even the following Monday but it’s still a cut above any you can buy in the supermarket. Priority mail has different meanings with different postal carriers.

It’s expensive, $21 for less than a pound bag of beans. I grind only the amount I need every morning. I get two shipments a month so that’s $42/month. However, another way of thinking of it is I used to drink 2 cups a morning so that’s 6o cups a month or $0.70 a cup. Let’s see you get that price at Starbucks. I long for the day my tastebuds readjust to Blue Bottle Coffee.

Hope springs eternal and I hope someone shows up tomorrow to (1) stucco (2) paint (3) and finish the utility room. Michel has already offered to help me put everything back after the vestibule is complete but I’m beginning to think it may not be by Wednesday.

Tonight, I plan on a hamburger for dinner. Like I wrote previously, I made the patties thin and plan to only have onion and dill pickles on it. I realize it seems like everything is always better when we were younger, but I really do think the best hamburgers I’ve ever had was when we lived in Boyle, Mississippi. Archie would ride me on the handlebars of his bike to a little hole-in-the-wall burger joint. (Can’t see that happening today with all the safety requirements with bikes.) Today, the burger place wouldn’t be allowed to open but those were the best tasting burgers ever. It was a weekly thing and it was addictive.

Stay tuned!

Cancer Update – Part 24

25 June 2023

It’s been a good day. A couple of minor bouts of diarrhea last night but so far, today has been fine. Other than the rain. We are under a flood advisory and we are in the middle of an electrical storm. I’m staying off the big computer and have not turned on the television. People are amazed when I tell them about lightning striking land lines and the electrical shock traveling through phone cords. I’m sure I’ve mentioned that experience occurred with my Dad when he was in the military. The lightning bolt traveled through the phone line and knocked him across the room.

Rain and more rain.

These days I tend to get a little nervous when rain starts to pool around the house. I’d just as soon not go through another flood episode for the next 100 years.

As far as the diarrhea is concerned, nothing seems to totally stop it. I’m alternating between Lomotil and Imodium. I’ve been told by the doctors that it’s OK to take Lomotil every six hours and Imodium every four. I don’t do that much but pretty close to it. Since it hasn’t stopped, I’ve given up on the BRATT diet. I’m still eating the diet but decided I need to get some real food into me. Even when I poop, it’s starting to look like little bananas. Can’t say I’ve ever had yellow poop before. Either that or I’m hallucinating.

I therefore went to Whole Foods today and bought some hamburger patties. They sell premade patties with additions like bacon and cheese or bleu cheese and onion. I bought 2 plain and 2 bacon and cheese patties and when I got home divided those into two to make 8 patties that are much thinner. I really prefer thinner patties. I made a plain one for lunch and put on the bun mustard, ketchup, onion and dill pickles and was able to eat the entire burger. That’s a first for me since my chemo infusion. I have no idea why hamburgers sound good to me, taste good to me and allow me to eat them when thoughts of other foods turn me off.

I made the mistake of brushing my teeth with minty toothpaste last night as an experiment to see if my gums and lining of my mouth had recovered from the infusion. It hadn’t. I can’t believe how much minty toothpaste burns. It’s back to baking soda for toothpaste.

I also bought some precut chunks of watermelon. I feel like I can eat the fruit (it still tastes good to me) and I need something in my stomach besides BRATT. I also mix vanilla yogurt with the fruit and the yogurt has probiotics. Hopefully that will help replace some beneficial bacteria in my gut. I suspect the antibiotic they gave me in the hospital did a number on my “good” bacteria.

While at Whole Foods, I always check their cut flowers. They had some beautiful peonies but I knew they only last a couple of days when the do open up. I think peonies are my favorite flower. It goes back to the days we lived in Boyle, Mississippi and the older lady next door was a retired elementary school teacher. Mother would go over and visit and she’d take me. The lady would give me mimeographed drawings of plants and a set of crayons and I was off the the races with coloring. I distinctly remember coloring in peonies.

The lady at the kiosk at Whole Foods said to wet your hands and force the petals of peonies open and even then, they’d only last three or four days. Instead, I bought yellow roses.

I always think of the song “The Yellow Rose of Texas” when I see these.

I’ve always loved yellow roses. When I was union president and senate president of Broward College, I often had to go downtown to the administrative tower and deal with the president of the college and various vice-presidents on union and senate matters. Sometimes the meetings were rather acrimonious and I remember one time the president of the college tried to throw me out of his office.

Regardless, the personal secretaries (administrative assistants) of all the bigwigs always treated me with courtesy and respect. I got in the habit of taking them each a yellow rose when I showed up. I think that earned me more good will than anything in the downtown office. I also think it shamed some of the big administrators into thinking more about their administrative assistants.

June is almost over which means it’s getting closer to surgery time. I look at it as another step in the process and look forward to getting it over with.

Stay tuned!

Cancer Update – Part 23

24 June 2023

Yesterday was a nice interlude from all the craziness in my life but it was back to reality today. I’m tired from the trip to Miami (sounds like a journey of several days) and I did experience the dreaded diarrhea a couple of times last night.

Saturdays are my typical days to house clean (it’s hard to do with the construction going on) and wash day. Maybe I should say “house clean at-it.” Wash day hasn’t changed much since I was a kid and helped Grandma Searcy boil clothes in soapy water on an outdoor fire on Saturdays (I have her old wash pot). It still takes me two loads of clothes and I’m not sure what I dislike more – the washing or folding. At least I’m not outside tending a fire with a wash pot. And at least I’m not washing clothes on Sunday – a big sin in the South.

Years ago, before I got the stand alone generator, I anticipated the power going out and not being able to use the washing machine. I invested in a large wash tub and scrub board and clothesline with clothes pins. I still have the tub and scrub board but thankfully have never had to use it. That scrub board would have led to bleeding knuckles. I have used one in the past and it is no fun. If I remember correctly, it was Boy Scout camp and they didn’t have a washer for the staff who stayed over on weekends. I’m not sure I have the strength in my hands any more to scrub and wring out clothes like you would have to with a scrub board. These days, scrub boards are more appropriately musical instruments.

I texted the contractor this morning and asked if he would be able to at least finish the inside of the house before July 13. That’s the day of my surgery and I know after that I will not be able to do much about putting the house back together. I can’t imagine hanging curtains after the operation. He texted me back he thinks he should be through by this Wednesday. It’s tiresome with stuff out of place and having to clean around it. Not that once it’s done I’ll be more inspired to clean. He confessed someone’s house he was working on was having a birthday party and needed the construction finished and that’s why he hadn’t been back to my place. I fully understand. My project is probably peanuts compared to some of the other projects he’s faced with.

Next week I have my six month checkup with my endocrinologist. I’m sure that will go well with my bloodwork all over the place. You know its bad when the nurse calls you before you meet with the doctor to tell you about your bloodwork. After that, it’s the meeting on July 3rd with my new hematologist/oncologist. Let’s hope I don’t have to fire this one too.

Stay tuned!

Everything Fred – Part 77

23 June 2023

It was take a break from cancer day! I drove Tom down to UMiami Health to the Brain and Spinal Institute. We did the expressway all the way down and were actually early for his appointment.

Tom’s has suffered from trigeminal neuralgia for over four years and it finally looks like there may be a solution to his problem. The bad news was the doctor was late to work that morning and there was a 2 hour – which turned out to be a 3 hour – wait. We spent the time reminiscing and joking, laughing and giggling over past misdeeds. After getting a briefing on a potential surgery, we headed to get some lunch – at 3:30 pm.

Tom had checked out eating establishments around Jackson Memorial Hospital system and found Bunbury’s. It’s mostly Argentine food (which I love) and was a straight shot to the restaurant from UHealth. I really like the decor.

Looking towards the back of the restaurant
You walk through their wine selection on the way to your table.
The bar area.
The restaurant was a mismatch of decor. This wall was “paneled” in drawer fronts.

The tables were heavy, solid oak tables and the chairs were all mismatched for that shabby chic look. Interspersed were side boards like you would find in someone’s home. The wall that faced the street was stacked with wine bottles of the exact same size and color to provide a “green” effect through that part of the restaurant.

I wish I could be more effusive about the food. It may have been excellent but my taste buds are still off. Tom ordered a glass of Chardonnay and I took a sip. It was the most foul, bitter taste so I knew my taste buds were in purgatory.

I did eat 1/2 of a sandwich but I really still have no appetite. Tom treated me to lunch for driving him down.

Getting out of Miami was more of a challenge. The usual on-ramp to I-95 from that area of Miami was closed and I had to drive north on Biscayne for a few miles to the next ramp. It was bumper to bumper all the way to home with an unexpected 1/2 mile of open highway. There was no accident – just drivers not paying much attention. I could not access the Express Lane from that on-ramp but it wouldn’t have done any good. Many times we moved faster than the express lanes.

The best news of the day was no one episode of diarrhea! Yea! Lamotil!

It was nice to spend the day with Tom. He’s great fun and very entertaining. We go way back with the college. He started teaching there in the late 60’s and I’ve known him since 1985. He and his partner Kurt are really good friends.

Stay tuned!

Cancer Update – Part 22

22 June 2023

I had a good night last night and didn’t have to get up once with diarrhea. Of course, that was probably due to the dosage of Lomotil and Imodium I took and I’ll probably be stopped up all day but that’s preferable to having to go every five minutes. Like I said before, take your victories where you can.

Northwest Exterminating showed up around 9 am and I showed the guy where the termites were discovered in the renovation of the east wall and below the window. The company uses a no-tenting technique where they drill into the wall board and squirt a gel that attracts termites. They take the gel back to the queen and it kills her.

Over the 28 years I’ve lived in the house, I’ve had the house tented for termites twice and it is quite an involved process where all food stuffs have to be removed and things packed in plastic bags. It’s kind of like an colonoscopy – the prep is the worst part. When they do tent, you have to stay somewhere else for two nights.

With this no-tent process, it’s no mess and no move out. I’m not sure how effective it is but it is sufficiently good that if you sell a house and you maintain the treatment, it’s enough for the sell of the house with a termite free certificate.

Next up was checking on my Lomotil prescription with CVS. The liquid form has to be ordered and I thought they ordered it. Apparently, it is still on order. Meanwhile, they have me under two separate profiles. That means I get notified under one profile when a prescription is ready but not the other. It also means that if I go to pick up a drug and they look under the wrong profile, they tell me the drug is not ready. I asked them to merge the profiles and was told no one in the pharmacy knew how to do that. They provided the corporate number.

When I called the corporate and finally got to a person, I was very quickly disabused of the notion that was their job. I was abruptly told that was the problem of the pharmacy and that was what the pharmacy’s help desk number was for. Back to my local CVS. They said it would be sent to their manager and handled.

My endocrinologist office called and wanted to know what the hell was wrong with my blood tests. Actually, the nurse for Dr. Jellinger, Farah, told me Dr. Jellinger thought it was due to chemotherapy (I told him about the cancer at an earlier visit) but she wanted to confirm I was undergoing chemo. I then related the convoluted story of the infusion, the emergency room, the hospitalization, and the diarrhea. She agreed with me 14 days after infusion was not a good sign. The endocrinologist blood draw was on the 19th of June, the infusion on the 5th and my white blood cells should have been closer to normal parameters.

In any case, she wanted to fax a copy of my blood work to the hematologist/oncologist. I explained there was a new one and I had fired the old one. Anyway, I provided the fax number this morning. My white blood cell count was through the roof. Then again, maybe that’s why I’m still fighting diarrhea.

Tomorrow I take my friend Tom to Miami at Jackson Memorial for a consult with a neurologist. One problem with getting old is most of your friends are old and you spend time trading taking people to doctor visits. The good news is we all have good days we can do that for each other.

Stay tuned!

Cancer Update – Part 21

20 June 2023

Yesterday was a good day! As of this writing, no diarrhea (thank you Lomotil)! Not only did I make it to the credit union and filled the jeep up with diesel, I managed to rake leaves on the west side of the house where the mango is shedding so much, sweep the path, clean the pool filter, clean the patio, but also managed to kill weeds that were threatening to overgrow the house from all the rain.

This is a little misleading. Add in iguana poop, seeds of mangoes, half-eaten mangoes and tree branches and you get the idea.
At least now I don’t slip on iguana poop and rotten mangoes.

My stamina held up pretty well until the very last. After the weed killing, I jumped in the pool for the first time since the end of May. I’m sure the water temp was in the 90’s from the hot afternoons. Even so, it was a refreshing dip.

Funny thing about cleaning the pool filter. It was exceptionally dirty since I haven’t cleaned it since June 5th. I use a water hose to clean the pleats and today the water pressure was only so-so. At times, usually the mornings, the water pressure is pretty good but sometimes in the afternoon, it is rather weak. I wonder if it has something to do with water usage? It was so weak I walked around to the front to check to see if the construction people had accidentally left the front hose running. It wasn’t that.

I wrote the above yesterday. That tends to be how I do these blogs. I start the day before posting, write a little, let it sit, then come back and review and then add anything new.

What’s new is around 1:30 am the diarrhea came back with a vengeance. I was up and down until around 8:30 am with episodes about every 15 minutes apart. I finally got it tamed with both a Lomotil and an Imodium. I still pretty weak from the episodes. It’s back to bananas, rice, applesauce, toast and tea. I had just gotten started back on a regular diet.

I would say there’s something more going on besides the chemo with my diarrhea but they performed a fecal occult blood test (to check for cancer and bleeding polyps) and also tested for Clostridium difficile (bacterium that can damage the large intestine) and both were negative. I can only lay it at the feet of the chemotherapy. Seems like 18 days is a little long for the symptoms to persist.

I canceled the afternoon’s dental appointment (cleaning). I dreaded the thought of being trapped in a dentist chair with the need to flee the room to find the bathroom. At least my bathroom is only steps away. The one in the dental office is down two long halls. I’d never make it in time.

Holy Cross called again this morning to see how I was doing. I mentioned the diarrhea and also that no one had sent the orders to my primary for me to get an x-ray and EKG. I’ll give it another day or two and then call the surgeon’s office and see what the hold up is. I can’t get them more than a week before surgery, so I have time.

With iffy digestive issues, I’ve decided to lay low for the day and stay in bed, read, and try to get enough nourishment and fluids to prevent dehydration.

Stay tuned!