Cancer Update – Part 92

31 December 2023

New Year’s Eve! The fireworks have already started. It should be quite a show in the neighborhood tonight. I maintain it’s the adults shooting off the fireworks and not for the kids entertainment. A lot of dogs and adults will need tranquilizers tonight.

I’m tired of feeling numb and tired. I think I’m beginning to figure this stuff out. Herceptin has side effects of fatigue and edema (swelling). Diabetes has as a side effect edema which can cut off circulation to the extremities and that can cause nerve damage. I suspect both Hercepin and diabetes have had a synergistic effect on me for the painful neuropathy. My feet and lower legs are certainly swollen – and numb – and painful.

On the other hand, I would have assumed the fatigue would abate the farther away I get from a Herceptin infusion. It has not. I drag around the house all day. My gait is somewhat zombie-like.

There are suggestions for the edema. I’m wearing compression socks and I plan to put my feet up today – literally. Several websites suggest elevating the feet above your heart. When you think about it, that’s hard to do. I can lie on the couch with my feet on the arms and my head/heart level with the cushions. Another option is my bed. I can raise the foot of the bed (it’s a bed that allows you to raise the head or the foot).

My glucose levels are high and my endocrinologist is concerned. As a consequence, I’ve started Jardiance again. I’ve got reservations about that but I need to get the glucose levels down. Dr. Jellinger wants me to test my glucose three times as day (as opposed to the usual one). So far, yesterday was 150, 200, and 185 (morning, after lunch, before bedtime).

I’m continuing to wean myself off Lyrica. I don’t think it did anything for me in the sense of reducing the pain from neuropathy. Too bad. It was a cheap drug through Publix.

My mental attitude is just OK. It’s depressing to go through this day by day with seemingly no improvement. I just hope the new year brings a better response physically and mentally.

By the way, I got an estimate of cost for the echocardiogram. It was over $4900. Fortunately, it was also estimated my insurance would pay for the entire procedure so my cost was projected to be $0.00. I keep waiting for some slip up or some unauthorized procedure to wipe me out financially. Keep your fingers crossed for me.

Otherwise, my big plans for today include putting black-eyed peas on to soak tonight so I can cook them tomorrow and “eat a bait” of them for good luck. (Using the word “bait” with the word “eat” was a thing my Grandmother Ruby always said.).

Everyone asks me, as a Southerner, if I eat collards with the peas. The gist is collards represent money coming in the new year and the peas are for good luck. My family never did collards routine. We would eat them if available but sometimes the frost took them out. Maybe that’s why we never had any money.

Another tradition elsewhere in the South is Hoppin’ John where you mix the peas with rice and onion and bacon. Again, not a Searcy or Agnew tradition. I’ll stick with my black-eyed peas, although I do add diced onion.

I’m optimistic about 2024. I know it’s easy to be downcast with the election of a president and endless commercials. I certainly have reason to be depressed with the continuing cancer treatments. However, I tend to be a person whose glass is half full – but with a nod to being prepared for the worst. It’s the Boy Scout in me with that motto “Be Prepared.” That was reinforced when I was in the Coast Guard whose motto is “Always Ready” (Semper paratus).

Happy New Year, everyone!

Stay tuned!

Everything Fred – Part 197

30 December 2023

In spite of the cold weather, my Glorioso lily managed a bloom. It’s brought a little sunshine into a rather upsetting week. I love the boldness of the colors of the lily. One thing I enjoy about the leaves is the ends form tendrils which allow it to wrap around anything it comes into contact.

Hostage Situation Tense

I think I have this figured out. I finally had someone from Hollywood Chrysler Jeep call me back. They are waiting on an exhaust sensor. They don’t do piecemeal work so they haven’t really done anything in four days. When the sensor comes in, they will then start/complete the work. The estimated time of arrival of the sensor is sometime on the 3rd of January which means the work may not be completed until the 4th. That’s assuming the sensor comes in on the 3rd. I would have appreciated a little more communication from them over the last 4 days.

I now begin to wonder how much of everything they will say is covered under warranty and how much I have to pay. I’ve already been told the change in the bulb of the headlight is $397.

The good news is I have a fairly quiet week. Tuesday I have an echocardiogram at Holy Cross to make sure the Herceptin isn’t destroying my heart. Then I have a Thursday session at the chiropractor (which I need). Joel has kindly offered me the use of one of his cars or to drive me to both appointments. Thank goodness for grocery delivery!

Usually, I pep up after a hydration infusion but I’m dragging today. My energy level is about zero. I had a rough night last night. I increased the dosage of Lyrica to 150 mg last night. My lower legs and feet have swollen to the point I felt the skin on my soles felt like they were going to split apart. I also developed some itching which is a problem with Lyrica. I got 6 hours of sleep last night but it was really uneven.

I’ve decided Lyrica is not for me. I need to wean myself off it. Looks like I’ve done a lot of weaning at the end of the year with Lyrica and Prednisone. I did a single 50 mg dose this morning and I’ll do another 50 mg dose tonight. Then I hope to pare it down to 50 mg a day and then every other day. What a pain!

I managed to clean at the house this morning. It took me a while to put clean linen on the bed. I had to take breaks in between chores. I also managed to wash to loads of laundry and dry and fold and put away.

Ole Miss is playing Penn State in the Peach Bowl. As of this writing, they lead 23 to 17. It’s been an exciting game so far and well played by both teams.

Stay tuned to see what goes wrong next in the life of Fred!

Everything Fred – Part 196

29 December 2023

New Year’s Eve eve! I slept nine hours last night! Taking 150 mg of Lyrica might have had something to do with it.

Here at Casa Fred it’s been an ugh day. My energy level was down again but I did manage to clean the pool filter and patio. I even trimmed some growth around the west side of the house. It was getting to the point I couldn’t get past the shrubs to take the garbage to the curb. Maybe I should have let it grow.

I kept waiting to hear from Hollywood Chrysler Jeep. Finally I got a text from someone (they didn’t identify themselves). Here’s the text:

“Vehicle is fully diagnosed, for the check engine light we are replacing bank one nox sensor under vehicle warranty.
The right front low beam light bulb needs replacement, grand total including tax $397.78. Please let me know if you wish to proceed.”

There was no mention of the head rest nor the recall for software update. I texted back about that and whoever answered it was taken care of. Who knows. I count it a win if I can walk out of the jeep service area for less than a thousand dollars.

I had to take an Uber into the cancer center. When you reserve a time, they charge you a booking fee ($10). The price from my house to the hospital was $30.47 and with the tip it was $36.56.

The cost from the cancer center to my house was $23.98 and with the tip, it was $28.77 (no booking fee).

In any case, I arrived at the cancer center very early for a 2:15 pm appointment. Pat was my nurse again and it was good to catch up with her and her holiday. She pumped me full of saline and magnesium and it was a fairly quick process. I was back home by 5 pm.

It’ll get cold (for South Florida) tonight with a temperature predicted of 54°F. Brrrr! Hopefully, sometime tomorrow I’ll be able to go pick up my jeep. They still haven’t notified me it is ready and it’s 6:20 pm.

Stay tuned!

Everything Fred – Part 195

28 December 2023

As of 4:28 pm I’ve not heard a word from the jeep dealer. I’ve called twice, left a message once and am no further along from finding out (1) if they have the head rest replacement (2) if they need to pull the bumper to replace the headlight or bulb (3) if they are upgrading the software for the recall and (4) what the check engine light means. I specifically scheduled the jeep going in at 8 am on Wednesday to give them plenty of time to fix everything and allowed for no appointments on Thursday in case they needed that day also. I now have no transportation to the hydration infusion tomorrow at 2:00 pm. I can take an Uber but I doubt the jeep place will reimburse me.

Here’s the text message I received from them after taking the jeep in. Since this text, nothing. “Hello, FRED SEARCY. Thank you for choosing Hollywood CJ to service your vehicle. We’ll keep you updated on your vehicle’s progress with messages just like this one. If you have any questions, you can send us a message here.”

Yesterday was a good day physically. Today not so much. My energy level crashed. However, Farah, the assistant to Dr. Jellinger, the endocrinologist, called to tell me my cortisol level is back to normal (14.0 µg/dL with normal range of 6.7-22.6 µg/dL). She also said he wants me to test my glucose either during the day or during the night just before bed in addition to the morning.

Later, Dr. Jellinger ended up texting me. I explained the crashes I was having. He wanted me to start Jardiance again. After giving him a run down of what was going on with me with the neuropathy, he suggested I up my Lyrica to 300 mg/day and not got back on Jardiance until I see if I adapt to the new dosage of Lyrica. It can make you dizzy and also cause edema of the legs. My feet are already swollen and I’m constantly dizzy as it is.

He suggested that if I don’t do Jardiance, he would put me on insulin. That I don’t want to do. He says it’s easy these days. You have something like an epipen and it supposedly doesn’t hurt to inject. I’d rather stay off insulin if at all possible.

John brought over more chili and a nice salad from an Italian market. I’ve gotten where I crave fresh vegetables but I also have to be careful. A bout of E. coli would not be good with my depressed immune system. It might be the final coup de grâce. In the words of the country song, “Turn out the lights, the party’s over.” Shades of Don Meridith. For those of you who don’t get the reference, he used to sing that at the end of every football game when there was never any doubt as to the outcome.

It’s rained all day and only just stopped. We are predicted for a low of 59°F tonight as a low. When I got up this morning it was 60°F outside and 75°F inside. I turned the unit over to heat to take the chill out and I suspect I’ll leave it that way for a few days. Later next week, we are predicted to be in the high 40’s.

Stay tuned!

Everything Fred – Part 194

27 December 2023

I was awake at 3:30 am and out of bed by 4. That always happens. When I know I have an early commitment, even though I set an alarm (5 am) I always wake early. After coffee and breakfast and ablutions, I made it to Hollywood Chrysler Jeep just a little before 8 am.

They have offices for 5 service representatives. One was working. Apparently the others were either no shows or late. I listed for her the four things I needed assessed: check engine light, headlight replacement, recall, and headrest. After some checking, she said there was a code associated with the check engine light. She asked if it was just a bulb or the entire headlight. I said I thought it was just a bulb. I suspect there’s a great difference in price in changing out a bulb versus the entire headlight system.

She listed all four on the work sheet and said I would be notified what was what and they would go from there.

Joel and Keith picked me up and we headed to the Bake Shack for (me) a second breakfast. I’d never been to the place. It’s a hole in the wall with mostly take out but they have a few tables. They were busy. I ordered an omelette and coffee. Since it was a bake shop and you had to walk past the baked goods, I got up during a lull at the cash register and picked 4 doughnuts. I got one each for Joel and Keith and two for me. Mine were mango surprise and a crème brûlée. Joel got the brown butter and sesame and Keith got the blueberry crumble. They and the breakfast were delicious. I’ll go back for sure.

I waited the afternoon for a call to tell me what was what with the jeep. Nada. I finally called around 3:30 pm and was put through their loopy phone system. After several tries, someone finally picked up. They were in the work bays and said he would get to me as soon as he went back up front. He forgot to put me on hold. I got an earful of conversations between him and the mechanics. I was shocked, shocked at the language!

Eventually, I gave up and started yelling hello into the phone. It was then he realized he had not put me on hold. Soon I was connected to someone else who told me my car would be held hostage overnight. That really wasn’t news. When I took it in earlier in the month, they told me it would be an overnight deal – probably the software package. All their software upgrades seem to take an excessive amount of time. I called Joel and told him not to worry about taking me to pick up the jeep today.

I did get a nap in and there was no late afternoon crash of energy. Hopefully I’ll be able to rescue my jeep sometime tomorrow.

Stay tuned!

Everything Fred – Part 193

26 December 2023

I hope you had a holly jolly Christmas. There was only one lump of coal in my stocking, so I’m thankful.

I have no idea what is going on with me. This is the second “down” day. Again I have absolutely no energy and have difficulty walking. I’m curious what my adrenal output is.

I can’t tell if the Lyrica is doing any good. I still have painful neuropathy in the feet and hands and it doesn’t seem to have abated any. I used the TENS unit again last night on my lower back for 15 minutes. Geez, I’m falling apart!

I was scheduled to go to Nancy and Michel’s last night and was scheduled for lunch today with Tom and Kurt. I was doing good to get the dishwasher emptied so I called and canceled lunch today. They were very understanding.

John came over last night with chili, diced onions and corn bread. He experiments with a lot of chili recipes and I have to admit last night’s chili was the best. He also make a mean corn bread. He does put a little sugar in his (heresy to Southerners) but the sweetness of the corn bread worked well against the spiciness of the chili. He dialed down the spicy part for me. I still haven’t been able to eat very spicy food like I once did. Otherwise, I’ve pretty much recovered my taste buds.

After John left, I watched an episode of Julia on MAX and then crawled into bed to read. I cut out the light around 9:30 and 7 hours and 49 minutes of sleep so I should be good on the sleep issue.

I’ll order groceries online today. I’m definitely not getting out. It’s also raining all day so that’s another excuse for home delivery.

Tomorrow, I dread. I take the jeep in for two recalls, one of which they have the ability to fix. There is no telling whether they will do the head rest and the headlight nor there isn’t any telling how much time it will take. I’ll probably take an Uber home from the dealership just so I don’t have to sit all day there. Pray for me!

Stay tuned!

Everything Fred – Part 192

25 December 2023

Merry Christmas! ¡Feliz Navidad! Joyeux Noël! Frohe Weihnacten! Etc. Etc. Etc.

Last night the neighbors across the street celebrated Nochebuena – until 2:30 am. They weren’t really noisy, but the bass sound of their music was a little penetrating through my walls. I didn’t really mind. They are great neighbors. I got plenty of sleep anyway (at least 6 1/2 hours). I didn’t even know they were partying until I got up to pee at 1:30 am. It was then I heard the bass.

Speaking of Nochebuena, Ivan and Gigi stopped by last night and provided me Christmas Eve dinner. It was good to see them. The food was great. Ham (2 methods of preparation), yams, green bean casserole, mashed potatoes, with flan and cookies for dessert. I repaid them with a little home made egg nog.

I’ve had four really great days where my energy level was almost back to normal. The fifth day was asking too much. I crashed today. I told Michel and Nancy I wouldn’t make it to dinner tonight. I hate canceling at the last minute but that seems to have become my life. I think I’ll have to turn down any more invitations until my energy level stabilizes. I hate that.

My cousin Jimmie took pity on me about my nails and sent me an electric nail clipper and emery. She has one and says it’s not too good on the clipping part but OK on the emery part. I’ve yet to try it since I recently clipped my nails. What’s funny is the instructions were in Chinese. There was no English translation. I managed to figure out how it works – there were only two buttons so even I could figure it out.

The slot on the right clips the nails. The circular structure is the emery device.

Christmas Day in South Florida is going to be cloudy with afternoon thunderstorms. We are getting a cold front coming through sometime this week and by Friday, we are predicted a low of 46°F. I’ll be extra careful to look out for falling iguanas.

There are so many hazards living in South Florida. Falling coconuts, falling palm fronds from Royal Palms and Bismarck Palms, falling iguanas, walking catfish, giant pythons, poisonous ornamental plants, the Florida legistlature. It’s lucky anyone survives. Even going to Disney World is dangerous now that it’s become a political football.

I got a notice this morning to not forget I had an appointment with Hollywood Chrysler Jeep for December 27. The only problem is that it is on my calendar for January 3rd. One of us is looney. Place your bets. I’ll show up on the 27th fully expecting to be told to come back on the 3rd.

I’m gonna have some lunch, crawl back in bed with my iPad, and take a nap. A Christmas miracle may occur and my energy level may return.

Stay tuned!

Everything Fred – Part 191

24 December 2023

A beautiful sunrise this morning!

Christmas Eve! I’m getting the egg nog ready. There’s a non-cook recipe in Irma Rombauer’s Joy of Cooking that I use. The recipe has raw eggs and you do have to be careful of yokes for Salmonella. However, the recipe also calls for 2 cups of bourbon or rum. I figure that’s enough to kill pretty much anything in the concoction. I’ve made this many times over the years and haven’t killed anyone yet.

My luncheon at the Capitol Grille got canceled today. Too often these days when we plan to get together, one or more of us have maladies. I actually feel pretty good this morning and was planning to go but I do have the shakes from the Lyrica. I’m waiting for it to work and abate the pain of the neuralgia but nothing yet. However, it does allow me a night’s sleep. Last night I got 7 hours and 45 minutes.

Chris picked me up at 6 pm on the dot. She drove us around the neighborhood and we had a good time critiquing the light displays and catching up with each other. This year seems to be “Wrap the Tree Year.”

That’s a lot of lights.

The most startling was the one that really went high up in the tree.

The best part was we didn’t get rained on. After our tour, Chris took me over to visit with Tucker. I hadn’t seen him in a while and I got a great greeting. Even though she lives only a block away, she insisted on driving me home.

Looks like it will be a laid back Sunday with a nap, some football, and making egg nog. I hope Santa brings you lots of goodies tonight.

Stay tuned!

Everything Fred – Part 190

23 December 2023

Merry Christmas Eve eve. That seems to be the meme these days. To me, it means change bed linen, wash clothes and clean house. This is my third good day in a row! My energy level is pretty good. My physical ability is still a little iffy. My balance is off and I can’t tell if the Lyrica is working (I’m up to 100 mg twice a day). I got everything done today but I was staggering from one task to another. The double dose of Lyrica seemed to have an effect on my nervous system.

Last night, I drove to Barbara’s and she drove me to Christine Wan’s where we met Joel and Keith for dinner. We all ordered the butterfly shrimp but the waiter came back and told us the kitchen was too busy to make the dish. Apparently, it’s complicated to complete. So there were two orders of sesame chicken and two orders of mu shu pork. I think the last time I mu shu pork was at the old Christine Wan’s on Federal Highway back in the 80’s.

It was good to see the guys and Barbara. This was my first outing since Thanksgiving and the first time I’ve felt up to it. The restaurant was, indeed, crowded but the waiters really did keep up with everything. As I came back from the bathroom, I sat down in the booth and found out it was not the booth. It was a case of mistaken identify on my part. The three people at the table were good natured about it. I think they got a good laugh about it.

Tonight, Chris and I plan to tour the neighborhood for holiday decorations. This time she is driving since my walking ability is a little dicey. The good news is there is no forecast of rain. Our walking tour often gets rained on. One year we got a proper drenching when the skies opened up. By driving, we’ll cover more territory.

Yesterday, while listening to NPR, I heard that Apple is in court. A company is suing them about the new Apple Watch. Apparently, they hired some of the employees of the company and then had them create a feature on the Apple Watch. The result is probably going to be the only people that will take the Apple Watch as a trade in is Apple. It may have other effects. I think it’s a good watch and the phone feature on the watch works much better than the old one. The old one would drop calls. I’ve only had one drop on the new watch and that may have been due to the other person.

Pretty soon it will be New Year’s Eve eve. Stay tuned!

Everything Fred – Part 189

22 December 2023

I hope you celebrated accordingly and survived the solstice! Yesterday was a good day! I can’t tell if the Lyrica is working yet but I had a little more energy than normal. I actually made it around two blocks in the neighborhood for the first time in a long time.

I even managed to clip my finger nails. I figured out a process. I lay the nail clipper on the table and insert my nail and I have enough leverage to push down on the clipper.

It’s the extra support of the table that lets me do it. I wonder how I’m going to get my foot up that high for toenails?

I had to cancel my holiday light tour with Chris but we’ve re-scheduled for Saturday night. She stopped by today and brought me a beautiful bouquet of tulips. They’re probably my second favorite flower!

If you haven’t figured it out by now, I love flowers. With Holley’s peonies, Chris’ tulips and my purchase of chrysanthemums (my birth flower) I have quite a festive table.

I had so much energy today I raked leaves and cleaned the pool filter, pool deck and patio. I usually rake leaves every Friday and I haven’t had the energy to do that in a while so there were plenty of leaves to fill up the yard waste bin.

Last night, I walked to a neighbor’s house because she always goes all out of the holidays. Her yard is one of the prettiest in the hood.

The cancer center called and asked me to come in early. I suspect some of the nurses want to get out of there early. I’ll go in for a 1 pm infusion instead of 2:30 pm.

Tonight, I’m going out with some friends for dinner (Joel, Keith and Barbara) – if I still feel well. Then Saturday is the holiday light tour with Chris. Sunday is lunch at Capitol Grille with Carol and Maureen. Monday is Christmas dinner with Michel and Nancy and Tuesday is lunch with Tom and Kurt. I hope I can make all of them!

I had some bad news yesterday. One friend posted she had cancer in one of her kidneys. Then I got the news that a first cousin has Merkel cell carcinoma. As my friend with the kidney cancer said, “Life’s not fair.” I hope both have cancers that are localized and treatable. I’m sure they have some hard days in front of them but I’m sure both will stay positive throughout the process.

Stay tuned!